Resources:
http://www.mdanderson.org/patient-and-cancer-information/cancer-information/cancer-types/von-hippel-lindau-disease/index.html
Organizations:
Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC 20008-2369
info@geneticalliance.org
http://www.geneticalliance.org/
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org/
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Von Hippel Lindau Family Alliance
2001 Beacon Street
Suite 208
Boston, MA 02135-7877
info@vhl.org
http://www.vhl.org/
Tel: 617-277-5667 800-767-4VHL (4845)
Fax: 858-712-8712
International RadioSurgery Association
3002 N. Second Street
Harrisburg, PA 17110
irsa@irsa.org
http://www.irsa.org/
Tel: 717-260-9808
Fax: 717-260-9809
